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Original Article
- Illness Experience of Patients with Chronic Hepatitis C Participating in Clinical Trials
- Hoo-Jeung Cho, Euna Park
- Osong Public Health Res Perspect. 2016;7(6):394-399. Published online December 31, 2016
- DOI: https://doi.org/10.1016/j.phrp.2016.11.001
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- 19 Download
- 5 Crossref
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Abstract
PDF - Objectives
To understand the illness experience of patients with chronic hepatitis C participating in clinical trials in the sociocultural context of Korea in an in-depth and comprehensive manner.
Methods
A focused ethnography approach was used to discover the pattern of illness experience of patients with chronic hepatitis C in the cultural background of Korea. Interviews were conducted with 11 patients with chronic hepatitis C participating in clinical trials and the collected data were analyzed with the domain analysis, taxonomical analysis, componential analysis, and theme analysis proposed by Spradley.
Results
With the cultural theme of “less-known illness, less-familiar illness,” four categories were derived: “my illness discovered by accident,” “shaken life,” “scary but inevitable treatment method,” and “precious life that can't be wasted,” along with 12 properties.
Conclusion
Public campaigns or education programs are needed to meet the needs for information on the disease for patients with chronic hepatitis C participating in clinical trials and help the general public acquire knowledge or change view on this disease. -
Citations
Citations to this article as recorded by
- Impact of Hepatitis C Virus Cure on Depressive Symptoms in the Human Immunodeficiency Virus-Hepatitis C Virus Coinfected Population in Canada
Gayatri Marathe, Erica E M Moodie, Marie-Josée Brouillette, Charlotte Lanièce Delaunay, Joseph Cox, Valérie Martel-Laferrière, John Gill, Curtis Cooper, Neora Pick, Marie-Louise Vachon, Sharon Walmsley, Marina B Klein, Lisa Barrett, Jeff Cohen, Brian Conw
Clinical Infectious Diseases.2023; 76(3): e702. CrossRef - “There are many fevers”: Communities’ perception and management of Febrile illness and its relationship with human animal interactions in South-Western Uganda
Michael Wandanje Mahero, Katherine M. Pelican, Jacinta M. Waila, Shamilah Namusisi, Innocent B. Rwego, Charles Kajura, Christopher Nyatuna, David R. Boulware, Joel Hartter, Lawrence Mugisha, Cheryl Robertson, Dominic A. Travis, Kate Zinszer
PLOS Neglected Tropical Diseases.2022; 16(2): e0010125. CrossRef - Effect of Disease-related Knowledge and Health Enhancement Lifestyle on Self-management Behavior among Chronic Hepatitis C Patients
Hoo Jeung CHO, Euna PARK
THE JOURNAL OF FISHERIES AND MARINE SCIENCES EDUCA.2022; 34(2): 219. CrossRef - Assessing potential cures: are there distinctive elements of value beyond health gain?
Saskia Hendriks, Steven D Pearson
Journal of Comparative Effectiveness Research.2021; 10(4): 255. CrossRef - Depression in patients with chronic hepatitis-C treated with direct-acting antivirals: A real-world prospective observational study
Mohamed A. Khalil, Hend Ibrahim Shousha, Saeed M. El-Nahaas, Mohamed Ibrahim Negm, Kariman Kamal, Nagwan Mohamed Madbouly
Journal of Affective Disorders.2021; 282: 126. CrossRef
- Impact of Hepatitis C Virus Cure on Depressive Symptoms in the Human Immunodeficiency Virus-Hepatitis C Virus Coinfected Population in Canada
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